European Standards of Care for Children with Cancer
In 2008 SIOPE launched a survey to collect information related to any exisiting regulation in different European countries on standards related to paediatric oncology/haematology wards. Led by Professor Jerzy Kowalczyk, with inputs from clinical trials and parents' groups contacts, the data collected across Europe has enabled SIOPE to suggest the best basic requirements to centres specialised in the treatment of children with cancer in the EU.
The 'European Standards of Care for Children with Cancer' is a consensus document on the minimum standards that institutions should have when caring for our young patients, in order to address inequalities in Europe (here you can find a report and presentations being made during the launch meeting in Warsaw in 2011). These Standards have been developed together with SIOPE, the Polish Ministry of Health and the Polish "Communication without Barriers Foundation", and agreed both by patient and parent groups and professionals.
Highlights from the Standards include:
Recommended staffing levels for the paediatric haematology/oncology ward
Components of care in a specialist facility
Delivery of Therapy
Monitoring the late outcomes of cancer
Psychological and Psychosocial Care
The rights of the hospitalised child
The critical role of parents
Download the European Standards of Care for Children with Cancer in different languages:
To find out more, please contact the office at office<at>siope.eu (please replace <at> with @)