European Partnership for Action against Cancer
The European Partnership for Action against Cancer was launched in 2009 after the European Commission published the Communication on Action against Cancer: European Partnership (click here to view). This is a unique partnership bringing together stakeholders from the entire cancer continuum in Europe in efforts to share knowledge and expertise to prevent and control the burden of cancer. Encompassing 38 Associated Partners and 90 Collaborating Partners, the European Partnership for Action against Cancer is a large and ambitious project and is a unique disease-specific 'joint action' incorporating all bodies involved in cancer: national health ministries, EU policymakers, regional agencies, professional organisations, patient groups, health NGOs and interest groups and industry.
SIOPE is involved in this initiative in order to improve the quality of care of children and adolescents with cancer as well as to assess the relevant organisational aspects in paediatric oncology. Together with SIOPE, the Polish Ministry of Health organised a meeting in Warsaw, Poland in October 2011 to promote these 'Standards of Care' address inequalities in Europe. Click here to view a report on the meeting.
SIOP Europe is the only organisation representing children and young people with cancer in the initiative. In partnership with the Polish Ministry of Health, SIOPE will disseminate European Standards of Care for Children with Cancer, a consensus document agreed both by patient and parent groups and professionals and in cooperation with the Communication without Barriers Foundation in Poland, on the minimum standards that institutions should have when caring for our young patients. Click here to view the European Standards of Care for Children with Cancer (also available in other languages - scroll down to download!)
Highlights from the agreed Standards include:
Recommended staffing levels for the paediatric haematology/oncology ward
Components of care in a specialist facility
Delivery of Therapy
Monitoring the late outcomes of cancer
Psychological and Psychosocial Care
The rights of the hospitalised child
The critical role of parents
Deliverables of this part of the European Partnership for Action against Cancer include:
Production and dissemination of the European Standards of Care for Children with Cancer
Conference organised by the Polish Health Ministry with SIOPE to increase policy and public awareness of the need for the development of standards of care in paediatric oncology in European health system: 20 - 21 October, 2011 in Warsaw, Poland
Survey of Paediatric Oncology units to track the changes observed since the establishment of the standards of care
Download in different 'European Standards of Care' in multiple languages:
English
Greek
Polish
Portuguese
Serbian
Spanish
To find out more, contact the SIOPE office (office(at)siope.eu (please replace (at) with @)).