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Manifesto

siope_img_European Elections 2014 Electoral Manifesto

European Elections 2014

Manifesto for the paediatric oncology and haematology community

During the 2009-2014 European Parliament mandate, a small and very active group of MEPs proactively supported the paediatric oncology and haematology community. The next European Parliament shall sustain and reinforce its support against paediatric cancer. In May 2014, European citizens will have the opportunity to change the future of Europe for the better by electing the new members of the European Parliament. Some of our younger citizens deeply need this change happening as quickly as possible.

Despite progresses made over the last 50 years, Paediatric cancer is still a major public health issue in Europe:

  • Each year more than 15,000 children and adolescents are diagnosed with cancer in Europe;
  • 3,000 patients die of cancer each year and cancer remains the first cause of death by disease in Europe in children older than 1 year;
  • Up to 500,000 European citizens are survivors of a paediatric cancer and it is estimated there will be nearly 1 Million by 2020 – 2025;
  • 20% to 40% of survivors experience long-term side-effects which may be severe and affect their daily life.

By signing this manifesto, I declare my awareness and my willingness to support the paediatric oncology and haematology community in Europe in fighting childhood cancer.

Together with the European Society for Paediatric Oncology (SIOPE), the only pan-European organisation representing all professionals working in the field of childhood cancers, and the European representative of the International Confederation of Childhood Cancer Parent Organizations (ICCCPO) I will contribute towards ensuring the paediatric oncology and haematology community are heard and will actively work for the achievement of the following objectives:

  • Promote equal access to standard treatments, care, follow-up and clinical research across Europe;
  • Reduce the survival gap in low/middle-income Member States, where the survival rate is 10 to 20% lower compared to high income Member States;
  • Address the insufficient national and European funding for specific research (basic, translational and clinical) on paediatric cancers;
  • Support the establishment of European initiatives aimed to incentivise the development of specific innovative medicines for children and adolescents with cancer;
  • Support appropriate follow-up measures for paediatric cancer survivors, so to tackle long-term toxicities of treatments and their consequences;
  • Advocate that each Member State will put in place social policies aimed at supporting children and adolescents with cancer and their families during and after the treatment period;
  • Proactively monitor the EU legislative processes in order to guarantee that new initiatives will enhance healthcare and research in paediatric oncology and haematology.

All Signatures

Manifesto in other languages

Endorsed by:

Mrs Viviane Reding (Luxembourg), Vice-President of the European Commission and Commissioner for Justice, Fundamental Rights and Citizenship

20 Members of the European Parliament (12 above with pictures and signature):

  • Mr Pino Arlacchi MEP, Group of the Progressive Alliance of Socialists and Democrats, Italy
  • Mr Jean-Louis Cottigny MEP, Group of the Progressive Alliance of Socialists and Democrats, France
  • Mr Matthias Groote MEP, Group of the Progressive Alliance of Socialists and Democrats, Germany
  • Ms Sylvie Guillaume MEP, Group of the Progressive Alliance of Socialists and Democrats, France
  • Mr Mario Pirillo MEP, Group of the Progressive Alliance of Socialists and Democrats in the European Parliament, Italy
  • Ms Christine Revault d’Allonnes-Bonnefoy MEP, Group of the Progressive Alliance of Socialists and Democrats, France
  • Mr Marc Tarabella MEP, Group of the Progressive Alliance of Socialists and Democrats, Belgiumhttp://www.siope.eu/wp-admin/post.php?post=1770&action=edit&message=1
  • Mr Keith Taylor MEP, Group of the Greens/European Free Alliance, United Kingdom

3 candidates to the European elections 2014:

  •     Mr Matteo Campora, Candidate European elections 2014, NCD/UdC (Italy)
  •     Mr Mario Maiolo, Candidate European elections 2014, Partito Democratico (Italy)
  •     Ms Elly Schlein, Candidate European elections 2014, Partito Democratico (Italy)

12 Organisations

EONS – European Oncology Nursing Society EONS
EORTC – European Organisation for Research and Treatment of Cancer EORTC
ESTRO – European SocieTy for Radiotherapy & Oncology ESTRO_gen_1_low-res
EUROCARE – EUROpean CAncer REgistry based study on survival and care of cancer patients Eurocare
European inter-institutional Cancer Support Group CS_logo_original
FIAGOP – Federazione Italiana Associazioni Genitori Oncoematologia Pediatrica FIAGOP
ICCCPO – International Confederation of Childhood Cancer Parent Organisations ICCCPO logo
ITCC – Innovative Therapies for Children with Cancer itcc
PanCare – Pan-European Network of Care of Survivors after Childhood and Adolescent Cancer pancare
RARECAREnet – Information network on rare cancers RARECARE_Net
The Brain Tumour Charity Brain Tumour Charity
Haima – Childhood cancer parent organisation (Czech Republic)  Haimacz_logo

Individuals

  • Ms Francesca Aloise (Italy)
  • Ms Simona Antonacci (Italy)
  • Ms Debora Bargardi (Italy)
  • Dr Adriana Bello, MD. Pediatric hematologist (Venezuela)
  • Ms Patrizia Bertolini, Azienda Ospedaliera Universitaria di Parma (Italy)
  • Ms Patricia Blanc, Imagine for Margo – Children Without Cancer (France)
  • Maria Bom-Sucesso, SIOPE member (Portugal)
  • Ms Barbara Bramanta (Italy)
  • Ms Maria Chiara Bellucci (Italy)
  • Ms Cristiana Berti (Italy)
  • Ms Maria Cable, EONS (United Kingdom)
  • Mr Luciano Capanna, Telecom Italia (Italy)
  • Ms Shirley Clark, The Neuroblastoma Society (United Kingdom)
  • Ms Silvia Costa
  • Mr. Mirco D’ Aversa (Italy)
  • Dr Nadya Dimitrova, Bulgarian National Cancer Registry (Bulgaria)
  • Mr Zoltan Dobai, ENCCA Project Manager (Austria)
  • Prof François Doz, Institut Curie (France)
  • Mr Martin English, UK CCLG, SIOPE, SIOP (United Kingdom)
  • Mr Carlos Esquembre, SEHOP (Spain)
  • Ms Samira Essiaf, SIOPE Secretary General (Belgium)
  • Ms Marina Favaro (Italy)
  • Ms Gemma Gatta, EUROCARE/RARECARE Coordinator (Italy)
  • Ms Susanne A. Gatz, SIOPE/ITCC/EpSSG (United Kingdom)
  • Ms Anne Goeres, Foundation Kriibskrank Kanner (Luxembourg)
  • Ms Cristina Gottardi  (Italy)
  • Ms Arja Harila-Saari, Nordic society for pediatric hematology and oncology, Sweden
  • Prof Henrik Hasle, Aarhus University Hospital (Denmark)
  • Dr Lars Hjorth, PanCare (Sweden)
  • Dr Maria Joao Gil da Costa, Paediatric Oncologist and SIOPE member (Portugal)
  • Ms Lejla Kameric, CCI/ICCCPO, Bosnia and Herzegovina
  • Ms Marianna Lentini (Italy)
  • Ms Anna Alessandra Loja (Italy)
  • Mr Ales Luks, HAIMA CZ/PanCare (Czech Republic)
  • Ms Angelo Luigi (Italy)
  • Ms Davinder Manku, Birmingham Children’s Hospital (United Kingdom)
  • Ms Gisela Michel, University of Lucerne (Switzerland)
  • Ms Marta Michetti (Italy)
  • Mr. Gian Paolo, Montini, Ass. Peter Pan ONLUS (Italy)
  • Ms Marianne Naafs-Wilstra, VOKK/ICCCPO (The Netherlands)
  • Mr Giorgio Nicotra (Italy)
  • Ms Madhumita Dad A. Panic, Birmingham Children’s Hospital (United Kingdom)
  • Ms Isabel Paolucci
  • Dr Vassilios Papadakis, Hellenic Society of Pediatric Hematology-Oncology (Greece)
  • Mr Steven Pease (United Kingdom)
  • Mr Rafael Peris-Bonet, SEHOP (Spain)
  • Ms Nicole Scobie, Zoé4life (Switzerland)
  • Ms Giulia Petrarulo, SIOPE Communication Administrator (Belgium)
  • Professor Kathy Pritchard-Jones, University College London (United Kingdom)
  • Mr Angelo Ricci, FIAGOP President (Italy)
  • Mr Giovanni Ripa, Associazione O.n.l.u.s. Fabrizio Ripa (Italy)
  • Katie Rizvi, Little People Association (Romania)
  • Ms Roberta Sette (Italy)
  • Ms Serena Stanig (Italy)
  • Ms Silvia Verdú Carrillo Pinoso (Spain)
  • Mr Ettore Ropia (Italy)
  • Mr. Giulio Senni (Italy)
  • Prof Martin Schrappe, SIOPE, International BFM-Study Group (Germany)
  • Ms Jasminka Stepan Giljević, pediatric oncologist, Children’s Hospital Zagreb (Croatia)
  • Ms Alessia Trevisani (Italy)
  • Mr. Luca Tribuiani (Italy)
  • Ms. Valentina Tolu (Italy)
  • Mr Didier Vignol
  • Ms Agnese Zanotti (Italy)

 

If you would also like to endorse the Manifesto,  click here or contact the SIOPE Office (office@siope.eu).

More information:

 

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