SIOPE, patients and parents
SIOPE has a close collaboration with European organisations representing the point of view of paediatric cancer patients and parents.
To consider the impact of cancer treatment on a child and the whole family should be taken into consideration by health professionals, policy makers and all stakeholders. SIOPE strives to incorporate the needs and opinion of patients and parents into its positions and advocacy activities, considering both the medical needs of the child, but also the necessity to provide services which look after the emotional and social needs of the family of the child.
SIOPE, patients and parents organisations are today allied to ensure that children receive the best possible care at the time of diagnosis and beyond.
The International Confederation of Childhood Cancer Parents Organisations (ICCCPO) is an umbrella organisation currently representing 148 parent organisations and survivor networks in 81 countries. Its European group is a forum for information exchange and interaction among European-wide groups.
Parent support groups have been formed over the past thirty years to provide information and practical, emotional and financial support to enable families to cope with the difficulties associated with lengthy treatment.
Innovative Therapies for Children with Cancer (ITCC) is an European group working to improve access to new drugs for children. One of the major objectives of ITCC is to improve access to information on and the ethical aspects of clinical research in children with life-threatening diseases. Parents, patients and their representatives are involved throughout the project, and the International Confederation of Children Cancer Parent Organisations (ICCCPO) is a full-partner of the ITCC Consortium.
Please find some interesting links for these 'little heroes' and childhood cancer parents' organisations.