Giulio J. D’Angio, University of Pennsylvania Professor Emeritus of Radiation Oncology: “It is clear that the child cured of cancer must be followed for life, not so much because late recurrence of disease is feared as to permit detection of the delayed consequences of radio- and chemotherapy. Careful studies of these late effects must be conducted.”

For more than 40 years, it has been known that lifelong care is needed for most survivors.  Survivors require closer health monitoring than the average population since cancer treatments are harsh and have long-term effects. Although many advances have been made through reducing treatment exposures, as well as better screening and prevention, there is still a lot of variation in the level of care survivors receive across Europe and internationally.  Survivorship care is in fact complex and there is a lack of harmonised, evidence-based guidelines.  As a result, there is still a long way to go in long-term follow-up care for children surviving cancer.

It is within this context that the EU-funded PanCareFollowUp project is looking at how to best deliver care to survivors of childhood and adolescent cancer in Europe.  The aim of PanCareFollowUp is to improve the quality of life for survivors of childhood and adolescent cancer by bringing evidence-based, person-centred care to clinical practice in the real world.   PanCareFollowUp is therefore looking at delivering care according to recently developed guidelines using an innovative model for integrated care thereby empowering survivors and encourage self-management.

Following the kick-off meeting of 15 January 2019, a project meeting was held on 3-4 June 2019 in Amsterdam, Netherlands.  A total of 38 project participants met to discuss the specific work packages, shared information on the latest studies as well as literature reviews, study outcomes, updates on the project progress, etc.  Discussions (although not limited to) centred on the following topics at the last project meeting: Lifestyle eHealth Intervention; Survivor-centred PCFU Care Intervention; Ethics; Survivorship Passport.


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