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Objective 6:

Quality of survivorship

To address the consequences of cancer

treatment such as long-term side effects,

to better understand the genetic background/

risk of an individual, and to improve quality

of life of survivors of childhood cancer.

With an 80% survival at five years, the number of childhood cancer survivors (currently

estimated to be more than 300,000 in Europe) is likely to continue to increase, and

improving their quality of life is a major goal. Two-thirds of survivors have late-occurring side

effects due to their treatments, which are severe in half of them, and have a strong impact on

their daily lives. It is anticipated that in 2030 there will be around 750,000 paediatric cancer

survivors in Europe.

The PanCare network was created in 2008 to address this issue [16]. PanCare is a pan-European

multidisciplinary network of health professionals, survivors of paediatric cancer and their

families, who collaborate to reduce the frequency, severity and impact of late treatment side

effects, with the aim of ensuring that every survivor of childhood cancer receives the best

possible long-term care. In addition, several survivors’ associations were created recently to

empower survivors and to help them tackle the issues raised above.



To improve awareness of the needs of childhood cancer survivors, together with them,

and facilitate research on it;


To empower survivors to take the responsibility for their own follow-up, ensuring that they

are well-informed on what to be aware of, how and when to access care and follow-up,

and who to turn to if and when they need to;


To encourage health organisations to address the issues of long-term follow-up and ease

the transition to adult medicine;



From AIEOP. Credit Attilio Rossetti photographer, Italy

Credit Joke Emmerechts photographer, Belgium