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List of acronyms/glossary

Biobank: A type of biorepository that stores biological samples (usually human) for use in research

Biomarker: Generally refers to a measurable indicator of some biological state or condition

CCI: Childhood Cancer International

CDDF: Cancer Drug Development Forum

CNS: Central Nervous System

COG: Children Oncology Group

CRC/ECRC: European Clinical Research Council for paediatric and adolescent oncology

CTF: Clinical Trial Facilitating platform

DG SANTE: Directorate General for Health and Food Safety, European Commission

EAC: (ENCCA) Ethics Advisory Committee

EAC: (ENCCA) Ethics Advisory Committee

ECCO: European CanCer Organisation

ECTGs: European Clinical Trial group(s) in paediatric oncology

EICNHL: European Inter-group Cooperation on Childhood and Adolescent Non Hodgkin Lymphoma

ENCCA: European Network for Cancer research in Children and Adolescents

EORTC: European Organisation for Research and Treatment of Cancer

EPAAC: European Partnership for Action Against Cancer

ERN: European Reference Network(s)

ESMO: European Society for Medical Oncology

EU: European Union

EURAMOS: European and American Osteosarcoma Study Group

FP5, FP6, FP7: EU 5th/ 6th/ 7th Framework Programmes for research and innovation

Horizon 2020: EU Programme for research and innovation (2014-2020)

I-BFM: International BFM Study Group

ITCC: Innovative Therapies for Children with Cancer

LTS: (ENCCA) Long-Term Sustainability (working group)

MAC: Members of the Parliament (MEPs) Against Cancer group

MOA: Mechanism(s) Of Action

NaPHOS: National Paediatric Haematology-Oncology Society-ies

PanCare: Pan-European network for Care of survivors after childhood and adolescent cancer

PanCareSurFup: PanCare childhood and adolescent cancer SURvivor care and Follow-UP studies

PICORET: Population Improvement in Childhood cancer Outcomes through Research, Evaluation and Training

PIP: Paediatric Investigation Plan(s)

POETIC: Pediatric Oncology Experimental Therapeutics Investigators’ Consortium

PPAC: (ENCCA) Parent and Patient Advocacy Committee

QUARTET: QUAlity and excellence in RadioTherapy and imaging for children and adolescents with cancer across

Europe in clinical Trials

SAB: (ENCCA) Scientific Advisory Board

SIOPE: SIOP Europe, the European Society for Paediatric Oncology

SIOPEL: SIOPE-Epithelial Liver Tumour Study Group

SIOPEN: SIOP Europe Neuroblastoma Group

SSH: Social Sciences and Humanities project

TACL: Therapeutic Advances in Childhood Leukemia and Lymphoma

TYA: Teenagers and Young Adults