Policy Priorities 2019-2024

On 6 March 2019, SIOP Europe and CCI Europe presented the 2019 European Manifesto for the paediatric oncology and haematology community: “Beating childhood cancer: Cure more and cure better – Towards zero deaths and zero late effects” at the European Parliament.

The policy objectives for 2019-2024:

  1. Advance an enabling legislative environment for faster and more efficient development of affordable innovative medicines for children with cancer and other life-threatening diseases
  2. Foster allocation of resources to childhood cancer research with focus on big data and deep learning tools
  3. Promote sustainability of the European Reference Networks (ERNs), of which ERN PaedCan is dedicated to paediatric cancer, in particular to combat inequalities in access to the best available treatment and expertise for children across Europe
  4. Support collaborative efforts on the development and implementation of appropriate surveillance guidelines and long-term models of care for survivors of childhood cancer
  5. Encourage initiatives on interoperability, harmonisation and security of eHealth platforms to foster cross-border research and knowledge transfer for the benefit of childhood cancer patients and survivors
  6. Support initiatives that foster and promote patient advocacy and empowerment in research, healthcare, and socio-economic areas
Read the European 2019 Manifesto.

Endorse the European 2019 Manifesto. By endorsing, you declare your awareness and willingness to support the paediatric oncology and haematology community in Europe in fighting childhood cancer.

Manifesto Endorsements

Members of the European Parliament (MEPs)

MEP Elena Gentile (IT, S&D)
MEP Patrizia Toia (IT, S&D)
MEP Lieve Wiernick (BE, ALDE)
MEP Alojz Peterle (SI, EPP) MEP Sirpa Pietikäinen (FI, EPP)
MEP Silvia Costa (IT, S&D)

MEP Tilly Metz (LU,Greens/EFA Group)

MEP Jana Žitňanská (SK,ECR)

MEP Cristian Busoi (RO,EPP)

MEP Roberta Metsola (MT,EPP)

MEP Annie Schreijer-Pierik (NL,EPP)

MEP Marian-Jean MARINESCU (RO,EPP)

MEP Željana Zovko (HR, EPP) MEP Laima Andrikiene (LT, EPP)

MEP Francis Zammit Dimech (MT, EPP)

MEP Merja Kyllonen (FI,GUE/NGL)

MEP Heinz K. Becker (AT, EPP)
MEP Bart Staes (BE, Greens/EFA)

MEP Michele Rivasi (FR, Greens/EFA)

MEP Daciana Octavia Sarbu (RO,S&D)

MEP Anna Záborská (SK,EPP)
MEP Tiemo Wölken(DE,S&D)

MEP Clara E. AGUILERA (ES,S&D) MEP Adina Ioana Vălean (RO, EPP)

MEP Pavel Poc (CZ,S&D)

Elisavet Kyritsi, MEP Candidate, EPP (New Democracy) GR

MEP Marijana Petir (EPP HR)

Katerina Markou, MEP Candidate, New Democracy, GR

Giorgos Amiras, MEP Candidate, New Democracy, GR

 

 

 

 

This Manifesto is calling for the achievement of more and better cures for childhood cancer in line with specific objectives as defined in the SIOP Europe Strategic Plan – A European Cancer Plan for Children and Adolescents.

 

Organisations*

 

 

 

*Organisations that have endorsed the Manifesto so far.  More expected and updates on this page will continue.

CONTACT DETAILS

SIOP Europe

Email: office@siope.eu

Tel: +32 2 880 62 82

Twitter: @SIOPEurope

 

CCI Europe

Email: europe@cci.care

Tel: +43 1 402 88 99 – 15

Twitter: @CCI_Europe

 

Twitter: #ICCD2019 #BeatingChildhoodCancer

 


c/o BLSI
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office@siope.eu

Tel: +32 2 880 62 82