Policy Priorities 2019-2024

On 6 March 2019, SIOP Europe and CCI Europe presented the 2019 European Manifesto for the paediatric oncology and haematology community: “Beating childhood cancer: Cure more and cure better – Towards zero deaths and zero late effects” at the European Parliament.

The policy objectives for 2019-2024:

  1. Advance an enabling legislative environment for faster and more efficient development of affordable innovative medicines for children with cancer and other life-threatening diseases
  2. Foster allocation of resources to childhood cancer research with focus on big data and deep learning tools
  3. Promote sustainability of the European Reference Networks (ERNs), of which ERN PaedCan is dedicated to paediatric cancer, in particular to combat inequalities in access to the best available treatment and expertise for children across Europe
  4. Support collaborative efforts on the development and implementation of appropriate surveillance guidelines and long-term models of care for survivors of childhood cancer
  5. Encourage initiatives on interoperability, harmonisation and security of eHealth platforms to foster cross-border research and knowledge transfer for the benefit of childhood cancer patients and survivors
  6. Support initiatives that foster and promote patient advocacy and empowerment in research, healthcare, and socio-economic areas
Read the European 2019 Manifesto.

Endorse the European 2019 Manifesto. By endorsing, you declare your awareness and willingness to support the paediatric oncology and haematology community in Europe in fighting childhood cancer.

Manifesto Endorsements

Members of the European Parliament (MEPs)

MEP Clara E. AGUILERA (ES,S&D) MEP Cristian Busoi (RO,EPP)

MEP Giorgos GEORGIOU (GUE/NGL, CY)

MEP Marian-Jean MARINESCU (RO,EPP)

MEP Roberta Metsola (MT,EPP)

MEP Tilly Metz (LU,Greens/EFA Group)

MEP Lucia Ďuriš Nicholsonová, (ECR, Slovakia)

MEP Sirpa Pietikäinen (FI, EPP)
MEP Michele Rivasi (FR, Greens/EFA)

MEP Annie Schreijer-Pierik (NL,EPP)

MEP Patrizia Toia (IT, S&D)
MEP Adina Ioana Vălean (RO, EPP)

MEP Tiemo Wölken(DE,S&D)

MEP Željana Zovko (HR, EPP)

 

 

This Manifesto is calling for the achievement of more and better cures for childhood cancer in line with specific objectives as defined in the SIOP Europe Strategic Plan – A European Cancer Plan for Children and Adolescents.

 

MEPs of 2014-2019 term and candidate MEPs

MEP Elena Gentile (IT, S&D)
MEP Alojz Peterle (SI, EPP) MEP Lieve Wiernick (BE, ALDE)
MEP Anna Záborská (SK,EPP) MEP Daciana Octavia Sarbu (RO,S&D)

MEP Silvia Costa (IT, S&D)

MEP Laima Andrikiene (LT, EPP)

MEP Jana Žitňanská (SK,ECR)

MEP Francis Zammit Dimech (MT, EPP)

MEP Merja Kyllonen (FI,GUE/NGL)

MEP Heinz K. Becker (AT, EPP)
MEP Bart Staes (BE, Greens/EFA)

MEP Pavel Poc (CZ,S&D)

Elisavet Kyritsi, MEP Candidate, EPP (New Democracy) GR

MEP Marijana Petir (EPP HR)

Katerina Markou, MEP Candidate, New Democracy, GR

Giorgos Amiras, MEP Candidate, New Democracy, GR

Organisations*

 

 

 

*Organisations that have endorsed the Manifesto so far.  More expected and updates on this page will continue.

CONTACT DETAILS

SIOP Europe

Email: office@siope.eu

Tel: +32 2 880 62 82

Twitter: @SIOPEurope

 

CCI Europe

Email: europe@cci.care

Tel: +43 1 402 88 99 – 15

Twitter: @CCI_Europe

 

Twitter: #ICCD2019 #BeatingChildhoodCancer

 


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office@siope.eu

Tel: +32 2 880 62 82